Fialkora MyndruUkrainian Clinical & Rehabilitation Psychologist
Ukraine · neurodiversity · voice · rights

Neurodiversity Advocacy, Self-Advocacy & Human Rights

A collaborative workstream connecting lived experience, parent support, psychology, journalism, public education and the right of neurodivergent people and families to be seen, heard and included.

SEEN
InvisibleRecognizedSupportedIncluded
Visibility is not the endpoint.
It is a pathway to voice, access, participation and rights.
Stanford Neurodiversity Summit 2026

Learning to Be Seen

Neurodivergent Self-Advocacy, Parent Support, and Social Understanding in Ukraine

Fialkora Myndru · Iryna Vorontsova · Valeriya Hjertenaes

Presented atStanford Neurodiversity Summit 2026
LIVED EXPERIENCEParent and family perspectives
+
PSYCHOLOGICAL INSIGHTNeurodiversity-affirming education and support
+
PUBLIC ADVOCACYJournalism, media and community dialogue
→ Social understanding · access · inclusion
Why this project matters

The invisible gap is about more than services

In Ukraine, neurodivergent people and families may face overlapping pressures from war and displacement, limited access to appropriate support, deficit-based narratives and too little representation of lived experience. The project treats voice, dignity, access and inclusion as connected issues rather than separate conversations.

Three interconnected strands

From lived experience to systems change

1

Parent-focused education

Accessible information and language that help families understand needs, reduce blame and advocate for appropriate support.

2

Community advocacy

Media, writing and public dialogue that bring neurodivergent and family voices into the conversation.

3

Psychoeducation

Neurodiversity-affirming knowledge for families, educators, providers and community settings.

Change model

From invisibility to inclusion

01InvisibleLived experience overlooked
02RecognizedExperience named and heard
03SupportedNeeds understood and addressed
04IncludedVoice, access and participation
Meaningful inclusion requires systems that recognize lived experience as knowledge and integrate neurodivergent and family voices into education, public discourse and support.
Collaboration

Different forms of knowledge belong in the same room

The work is intentionally collaborative. It brings together parent and lived experience, journalism, psychology, public education and international neurodiversity dialogue without reducing any one perspective to a supporting role.

Iryna Vorontsova

Journalism · lived experience · public advocacy

Iryna Vorontsova - researcher, mother, advocate, journalist and Editor-in-Chief of AUTISM.UA.

Editor-in-Chief of AUTISM.UA. Her perspective connects parent experience, journalism and long-term public advocacy.

Fialkora Myndru

Psychology · trauma · neurodiversity

Clinical and rehabilitation psychology, trauma-informed practice, psychoeducation and translation of professional knowledge into accessible community language.

Valeriya Hjertenaes

Lived experience · international dialogue

A collaborative perspective linking lived experience, neurodiversity, leadership and cross-border dialogue.

Poster QR destination

References & Additional Materials

This permanent page is the reference point for the printed poster QR. Sources, poster materials and future project resources can be added here without changing the QR code.

PERMANENT PROJECT URLfialkora.com/projects/advocacy-human-rights/
01 · Rights & inclusion context

Inclusion Indicators 2025

Inclusion Europe report covering 33 countries, including Ukraine. Used for the broader rights and inclusion context shown on the poster.

02 · Ukraine

Rights and inclusion in Ukraine

Inclusion Europe materials on supporting rights and inclusion of people with intellectual disabilities and their families in Ukraine.

03 · Human-rights framework

UN Convention on the Rights of Persons with Disabilities

International rights framework relevant to participation, inclusion, accessibility and being heard in decisions that affect one’s life.

04 · Advocacy platform

AUTISM.UA

Independent Ukrainian information resource founded by the CHILD.UA Association, with public information for parents and professionals and advocacy related to autistic people in Ukraine.

Additional project materials

Ready for poster PDF, Google Drive resources and future updates

No dead download buttons are shown. When the final poster PDF or a public Google Drive folder is added, it can be linked here while the printed QR remains unchanged.

Related platform

AUTISM.UA

AUTISM.UA provides information support for parents and professionals and helps bring autistic people’s needs, perspectives and rights into Ukrainian public dialogue.

“This is not only advocacy. This is human rights work.”

Learning to Be Seen · project framing